Access to and use of Data for better Healthcare: A Plea for a cooperative data and Research Infrastructure of Statutory and Private Health Insurers and the Network University Medicine (NUM) Datennutzung für eine bessere Gesundheitsversorgung-Plädoyer für eine kooperative Forschungsdatenplattform der gesetzlichen und privaten Krankenversicherung und dem Netzwerk Universitätsmedizin (NUM)

Schmitt J, Ihle P, Schoffer O, Reese JP, Ortmann S, Swart E, Hanß S, Hoffmann F, Stallmann C, Kraus M, Semler SC, Heyder R, Vehreschild JJ, Heuschmann P, Krefting D, Sedlmayr M, Hoffmann W, Baumgart A, Bickenbach J, Blaser R, Boeker M, Dreyer F, Fischer J, Fuchs T, Ganslandt T, Grönke A, Hapfelmeier A, Hellwig D, Henke E, Jäger-Schmidt C, Koss T, Kramer F, Leddig T, Löffler M, Müller G, Niedermaier T, Prokosch HU, Räuscher E, Sax U, Schepers J, Scherag A, Siegel F, Weidner J, Zeynalova S (2024)

Publication Language: German

Publication Type: Journal article

Publication year: 2024

Journal

DOI: 10.1055/a-2438-0670

Abstract

With the Network of University Medicine (NUM) and the Medical Informatics Initiative (MII), the BMBF is funding two pioneering, structure-building research measures that are now being merged. The data integration centers (DIZ) of the MII are to be consolidated in the NUM. The aim is to establish a standardized research infrastructure within which the existing data from the clinical routine care of the 36 German university hospitals, from clinical cohorts and clinical-epidemiological studies can be used for various research questions upon request and via coordinated processes. The legal basis for this was the MII's "Informed Broad Consent" , which had been agreed upon with ethics committees and data protection authorities and implemented in all NUM locations, with a so-called "health insurance module" that allows the collection and linking of routine medical data from statutory health insurance funds (GKV) and private health insurers (PKV) as a category of care-related data (VeDa). Linking this routine data with data from hospital information systems offers particularly high potential, as no single data source provides a complete picture of medical care and the two data sources complement each other optimally. The aim now is to integrate this routine data into the NUM's secure, transparent and participatory research infrastructure in a strategic partnership with statutory health insurance funds and private health insurance companies. This promotes Germany in its role as a research location and makes a decisive contribution to improving the quality and safety of healthcare in Germany in an evidence-based manner.

Authors with CRIS profile

Involved external institutions

Universitätsklinikum Köln Germany (DE) Julius-Maximilians-Universität Würzburg Germany (DE) Otto-von-Guericke-Universität Magdeburg Germany (DE) Charité - Universitätsmedizin Berlin Germany (DE) Universitätsklinikum Göttingen Germany (DE) Universität Leipzig Germany (DE) Universitätsklinikum Carl Gustav Carus Dresden Germany (DE) TMF – Technologie- und Methodenplattform für die vernetzte medizinische Forschung e.V. Germany (DE) Universitätsklinikum Mannheim Germany (DE) Universität Greifswald Germany (DE) Universitätsklinikum Münster Germany (DE) Universitätsklinikum Aachen (UKA) Germany (DE) Klinikum rechts der Isar Germany (DE) Universität Bielefeld Germany (DE) Universitätsklinikum Regensburg Germany (DE) Universität zu Köln Germany (DE) Carl-Thiem-Klinikum Germany (DE) Berliner Institut für Gesundheitsforschung (BIH) Germany (DE) Universitätsklinikum Jena Germany (DE) Carl von Ossietzky Universität Oldenburg Germany (DE) Ruprecht-Karls-Universität Heidelberg Germany (DE) Helmholtz Zentrum München - Deutsches Forschungszentrum für Gesundheit und Umwelt (HMGU) / Helmholtz Munich Germany (DE) Universitätsklinikum Heidelberg Germany (DE) Universität Augsburg Germany (DE) Universitätsmedizin Greifswald / Universitätsklinikum Greifswald Germany (DE) LMU Klinikum Germany (DE)

How to cite

APA:

Schmitt, J., Ihle, P., Schoffer, O., Reese, J.P., Ortmann, S., Swart, E.,... Zeynalova, S. (2024). Access to and use of Data for better Healthcare: A Plea for a cooperative data and Research Infrastructure of Statutory and Private Health Insurers and the Network University Medicine (NUM) Datennutzung für eine bessere Gesundheitsversorgung-Plädoyer für eine kooperative Forschungsdatenplattform der gesetzlichen und privaten Krankenversicherung und dem Netzwerk Universitätsmedizin (NUM). Gesundheitswesen. https://doi.org/10.1055/a-2438-0670

MLA:

Schmitt, Jochen, et al. "Access to and use of Data for better Healthcare: A Plea for a cooperative data and Research Infrastructure of Statutory and Private Health Insurers and the Network University Medicine (NUM) Datennutzung für eine bessere Gesundheitsversorgung-Plädoyer für eine kooperative Forschungsdatenplattform der gesetzlichen und privaten Krankenversicherung und dem Netzwerk Universitätsmedizin (NUM)." Gesundheitswesen (2024).

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